Reminder: This series of posts
is not just my personal tale of woe. I
write these for myself, but I post them for the benefit of all those who are
experiencing cancer and chemo themselves and the family and friends surrounding
them.
Here we go again:
another chemo treatment.
Hoo-fuckin’-ray! That means at
least a week of being zombie-fied.
This round I spent
a lot of time just lying on my back while listening to quiet smooth jazz, and
although I could readily recall a list of things to be done, that’s about as
far as I got with it. My mental clarity
and physical energy seem to be in a contest to be at the lowest level possible while
still maintaining minimal mobility and rational consciousness. It’s like a dare to get closer to the edge of
a bottomless crevasse. The line of an
old song came to mind: “his brain on the edge of knife is like a BB rolling
down an eight-lane highway.”
Luckily, I have
friends who gently remind me that it’s okay to be useless during the worst of a
chemo cycle. Also, I have to say that it
isn’t as frustrating now as it has been before.
I just care less because there’s just not anything I can do about it. So, if my only accomplishment is making it
into the shower, then it’s a good day.
On the physical
side of things, the urgency of urinating has returned. When the urge rises, it’s best to move
fast. Remember, I live on a boat, so I
am always only a few feet from the head (nautical term for bathroom), and still
I’ve pissed my jeans. It’s better to
wear only sweatpants so I can just yank them down. I am sure that the Cosmic Manager of
Insanely Minute Details elbows one of his staff, points through a Romper
Room-style Magic Mirror and says, “See that guy down there, the one sleeping
peacefully? Let’s give him an urge to
urinate and only 10 seconds to do it before he makes a mess all over himself.”
Now, for the sake of medical documentation and not puerile
humor (thanks for that word, Kin-Kin!), I’m going to mention something about
another bodily function. One very common
side effect of chemo is constipation, and a chemo patient gets to know it on a
whole ‘nother level. I use at least four
capsules of stool softeners with pretty much EVERYTHING I eat (btw, you can get
a bottle of 500 capsules at Sam’s Club for just a little more than the bottle
of 50 you can get at the drug store.) I
also use increasing doses of a laxative, and from treatment to treatment it’s
hard to find the right balance.
Constipation can go from just being uncomfortable to hijacking your
every immediate thought and concern.
Beside the pain, it can make you sweat cold and make you feel like
you’re having a 9-1-1 emergency event.
This treatment round I reached maximum pressure on the
morning of the treatment, which was fortunate.
The nurse recommended a laxative with magnesium citrate, and I have to
tell you, that stuff is like no other laxative I’ve ever experienced. Within minutes – minutes, mind you! – I felt
stirrings in my torso. Strangely, the
sensations were not down low but behind my ribs. Then from the top down I felt a curling wave
of coordinated force. It felt like
everything in my torso and abdomen was working together. Nothing happened, though, result-wise. I imagined a molecule of this magnesium
citrate wearing an army general’s helmet and shouting out, “Okay, let’s do
this! If we’re going to win this war, we
MUST work together! EVERY part that can
contract, CONTRACT! Now! Move it, move it, move it!” Then another wave of force traveled from
behind my lower ribs down through my lower abdomen. Whoosh!
The relief that flooded through my whole body made me want to smoke a
cigarette . . . Magnesium citrate is my newest, best-est atomic-laxative
friend!
The other physical thing that showed up this cycle (it seems
there’s at least one thing new every time) was a red rash on the underside of
both forearms. There’s not much to say
about it except that with my chemo-caused dry, hairless skin, my body is just
not the same body I’ve been inhabiting for 60 years. With my beard gone (which I’ve been wearing
nearly constantly since I was 19), when I look in the mirror I see less of
myself and more of Gollum. It’s a weird
feeling.
Overall, I do not like this particular chemo cocktail. The earlier treatments were not fun at all,
but I felt like a person with a terminal illness undergoing treatment, and I
was fine with that. I was still in the
game, albeit demoted to the minor league.
THIS shit, though, makes me feel like I’m dying. THIS shit has brought forward in my mind the
possibility that things could, at some point, turn on a dime and go downhill
fast. I vastly prefer a steady, somewhat
predictable decline.
Point to be made:
If a loved one of yours ever tells you he or she has had enough and wants to
discontinue chemo, don’t try to convince them to keep fighting. Living on chemo becomes less and less like
living at all.
This is the second treatment of this chemo’s cycle; it’s
three weeks on and off. It’s kicking my
butt.
I have NO energy. I
snooze, I snack, I stare. When I do get
vertical, I do ONE simple thing (like make coffee), think about doing a second
simple thing (like taking out the garbage or picking up dirty laundry from the
floor), then decide no, I need a nap.
Thank Modern Times for paper plates!
I have a near constant awareness of nausea, just a touch of
it, just enough floating at the edge of my consciousness for me to be aware of
it. I have little appetite, and when I
do fix food, I eat only half of a normal portion. And nearly everything tastes vaguely
salty: what’s that about?
Now that I have a completely hairless head and face, I look
more like a post-apocalyptic atomic radiation zombie, but I’m thinking maybe
I’m turning, partially, into a vampire.
Many months ago I mentioned that while under the influence of chemo the
clock means nothing to me, and that’s even more true now. If I do anything productive at all (like
writing this blog), it tends to happen in the middle of the quiet night.
With this new med, I’ve been getting more random firings of
my pain nerves. Legs, shoulders, torso,
and a couple of times behind my right eyebrow.
I’ll be lying motionless in bed and for no apparent reason both thighs
will spasm in pain. I feel my face
grimace, but it last only a second or two, and then a few more seconds to fade
away. The pain itself isn’t all that
intense, but it is annoying as hell.
Most of the time I’m in a decent mood, and if I put humility
aside, well, hell, all things considered, I’m usually in a pretty damn good
mood! I’ve fought too many protracted
wars with clinical depression to be discouraged by such a little, pesky thing
as Death looming in my foreseeable future.
Y’know, there’s a thought, for all of you who do not understand clinical
depression: this whole cancer and chemo experience is pretty much the
physical form of depression. For
those of you who don’t “believe” in depression, put that in your pipe and smoke
it!
Okay, noting that I am most often in a fairly pleasant state
of mind, I have to say that I don’t always wake up that way. Nope. During
the days immediately following a treatment, when I’m sleeping two hours at time
and feel sick and as weak as an infant, I wake up channeling sailors:
“Fuck! Fuck, fuck, fuckity fuck! More of this fucking fuck-shit! Cock-biting fucking shit! Fuucckkkk!”
I think it comes from leaving the bliss of sleep and silly dreams to be
confronted with the uncomfortable minute-to-minute reality of my current and
remaining life. I know, on a deeper and
deeper level, that I am never, ever going to get “back to baseline”, and this
is my new (and NOT improved) standard.
Because genetic engineering becomes commonplace, humanity changes. Some people are better, some are barely people, and a few are . . . unexpectedly special.
After young Jack accidentally angers the local crime boss, Trogg, he urgently needs to leave town. Everyone under Trogg’s influence is hunting him. To escape, to survive, he partners with mysterious GO-Girl. And GO-Girl, well, she has a score to settle.
Both Trogg and Jack are in for surprises, though, because during the pursuit, Jack discovers he can do the incredible.
For people who take their naps "religiously" . . .